Anneke Lucassen
Anneke was appointed Director of the CPM in August 2021. Anneke trained in Medicine and specialised in Clinical Genetics. After a DPhil identifying genetic factors in diabetes, she set up an interdisciplinary research programme exploring the ethical, legal and social aspects of integrating advances in genetics (and other forms of big data) into healthcare and society. She is consultant in the Oxford Clinical Genetics Service.
Anneke established and remains on the Steering Committee for the Genethics Forum, a national initiative for health professionals and colleagues from the social sciences, law, and the humanities who work with – or are interested in – the practical ethical and legal issues that arise in day-to-day clinical and research practice in genetics and genomics.
Much more information on Anneke’s research can be found here.
Recent publications
Determining a role for Patient and Public Involvement and Engagement (PPIE) in genomic data governance for cancer care
Katherine Sahan, Lesley Turner, Nina Hallowell, et al (2025), European Journal of Human Genetics, N/A
Making progress with newborn screening
Anneke Lucassen, Rachel Horton, Susan Weller, et al (2025), N/A, N/A
Balancing the rights of the pre-symptomatic child to be found with the risk of harm to others from the screening process.
Anneke Lucassen, Rachel Horton, Anneke Lucassen, et al (2024), European journal of human genetics : EJHG, 33
Familial genomic information: scope, context and implications for practice
Susan Weller, Helena Carley, Tara Clancy, et al (2024), N/A, N/A