Professor Anneke Lucassen
Anneke was appointed Director of the CPM in August 2021. Anneke trained in Medicine and specialised in Clinical Genetics. After a DPhil identifying genetic factors in diabetes, she set up an interdisciplinary research programme exploring the ethical, legal and social aspects of integrating advances in genetics (and other forms of big data) into healthcare and society. She is consultant in the Oxford Clinical Genetics Service.
Much more information on Anneke’s research can be found here.
Recent publications
Making progress with newborn screening
Anneke Lucassen, Rachel Horton, Susan Weller, et al (2025), N/A, N/A
Determining a role for Patient and Public Involvement and Engagement (PPIE) in genomic data governance for cancer care
Katherine Sahan, Lesley Turner, Nina Hallowell, et al (2025), European Journal of Human Genetics, N/A
Ethical preparedness in genomic medicine: how NHS clinical scientists navigate ethical issues
Kate Sahan, Kate Lyle, Helena Carley, et al (2024), Journal of Medical Ethics, 50
Balancing the rights of the pre-symptomatic child to be found with the risk of harm to others from the screening process.
Anneke Lucassen, Rachel Horton, Anneke Lucassen, et al (2024), European journal of human genetics : EJHG, 33
Familial genomic information: scope, context and implications for practice
Susan Weller, Helena Carley, Tara Clancy, et al (2024), N/A, N/A