Professor Anneke Lucassen
Anneke was appointed Director of the CPM in August 2021. Anneke trained in Medicine and specialised in Clinical Genetics. After a DPhil identifying genetic factors in diabetes, she set up an interdisciplinary research programme exploring the ethical, legal and social aspects of integrating advances in genetics (and other forms of big data) into healthcare and society. She is consultant in the Oxford Clinical Genetics Service.
Much more information on Anneke’s research can be found here.
Recent publications
Journeys Through Genomics: Co-Producing Visual Resources to Communicate Patient Experiences
Kate Lyle, Susie Weller, Anneke Lucassen, et al (2025), Sociological Research Online, 30
Classification of variants of reduced penetrance in high-penetrance cancer susceptibility genes: Framework for genetics clinicians and clinical scientists by CanVIG-UK (Cancer Variant Interpretation Group-UK).
Alice Garrett, Sophie Allen, Miranda Durkie, et al (2024), Genetics in medicine : official journal of the American College of Medical Genetics, 27
Ethical preparedness in genomic medicine: how NHS clinical scientists navigate ethical issues
Kate Sahan, Kate Lyle, Helena Carley, et al (2024), Journal of Medical Ethics, 50
Genomic data: building blocks for life or abstract art?
Rachel Horton, Kate Lyle, Susie Weller, et al (2024), Frontiers for Young Minds, 12
Challenges of using whole genome sequencing in population newborn screening.
Rachel Horton, Caroline F Wright, Helen V Firth, et al (2024), BMJ (Clinical research ed.), 384