Dr Susie Weller
Susie Weller is a CPM Research Fellow. Her current work forms part of the ‘Ethical Preparedness in Genomic Medicine’ study (Wellcome Trust, 2018-24), which combines conceptual, empirical, and theoretical work to examine the ethical and social challenges that arise for those living and working with genetic and genomic results. Susie draws on a range of conceptual tools from family and lifecourse sociology and employs qualitative longitudinal research approaches to explore, over time, interactions between individuals, those within their networks, and the wider social processes and structures shaping their experiences. She is particularly interested in: how patients and families navigate different routes through genomic medicine; the resources and support on which they draw to manage the process; how participants conceive of their data journey; and how caring relationships, identities and practices evolve over time.
Recent publications
Genomic data: building blocks for life or abstract art?
Rachel Horton, Kate Lyle, Susie Weller, et al (2024), Frontiers for Young Minds, 12
Journeys Through Genomics: Co-Producing Visual Resources to Communicate Patient Experiences
Kate Lyle, Susie Weller, Anneke Lucassen, et al (2024), Sociological Research Online, N/A
Glowing gels and pipettes aplenty: how do commercial stock image banks portray genetic tests?
Rachel Horton, Leah Boyle, Susie Weller, et al (2024), European journal of human genetics : EJHG, 32
Crafting Tempo and Timeframes in Qualitative Longitudinal Research: Case Studies From Health Research
Marta Wanat, Susie Weller, Aleksandra J Borek, et al (2024), International Journal of Qualitative Methods, 23
The ethical challenges of diversifying genomic data: a qualitative evidence synthesis
F Hardcastle, Kate Lyle, Rachel Horton, et al (2023), Cambridge Prisms: Precision Medicine, 2