This presentation introduces the ethical issues and governance challenges presented by large scale genomics research projects using the 100,000 Genomes Project as a case study. it goes on to suggest that these new forms of research present an important challenge in the way in which we understand autonomy and paternalism in research. Mike Parker is Professor of Bioethics and Director of the Ethox Centre at the University of Oxford. One of his main research interests is in the ethical aspects of the clinical use of genetics. He is a member of the Nuffield Council of Bioethics Working Group on the collection, linking, use and exploitation of biological and health data, the Data Access Committee of the Wellcome Trust Case-Control Consortium, and the Medical Research Council’s Ethics, Regulation and Public Involvement Committee. Professor Parker also chairs Genomics England’s ethics committee as well as being an ethics consultant to UK Biobank. He has previously been a member of a number of national and international committees and working parties including the Ethics in Practice Committee of the Royal College of Physicians and the Department of Health’s Committee for the Ethical Aspects of Pandemic Influenza.

Watch Now