Dr Ali Kay

Ali joined the CPM in September 2023. She is currently a co-investigator on an NIHR Research for Patient Benefit funded project – iPREGCARE. This project is investigating the implications of a new personalised recurrence risk assessment for couples who have had a child with a serious genetic condition.

Ali has over ten years experience in patient advocacy and engagement in research and is a current EUPATI fellow. She is committed to both evidencing the experience of patients and families with personalised medicine and also effective public involvement and engagement with research. She is the co-lead of the Making it Personal engagement project – utilising theatre to spark conversations on what it is like to live with genetic risk.

Ali completed her doctorate at Nuffield College, Oxford and later gained an MSc in Genetic and Genomic Counselling from Cardiff University. She has worked at the University of Oxford since 2022 and previously as a research fellow at Northumbria University, King’s College London, and the University of Westminster and also held teaching positions at Lancaster University and the Open University.

Professor Anneke Lucassen

Anneke was appointed Director of the CPM in August 2021. Anneke trained in Medicine and specialised in Clinical Genetics. After a DPhil identifying genetic factors in diabetes, she set up an interdisciplinary research programme exploring the ethical, legal and social aspects of integrating advances in genetics (and other forms of big data) into healthcare and society. She is consultant in the Oxford Clinical Genetics Service.

Much more information on Anneke’s research can be found here.