Registration and coffee opens 10:00, start 10:30

10:30 – 11:30 Session 1 – Chair: Anneke Lucassen
Introduction: Anneke Lucassen, CPM
2023 consultation and its findings: Ana Hallgarten la Casta, DHSC
A summary of patients’ and families’ experiences and concerns: Sophie Peet, Genetic Alliance
Emerging challenges: Padraig Dixon, CPM
Insurance industry view: William Meredew, ABI
Trustworthiness, scientific studies and insurance: Jonathan Sellers, Vhi

11:30 – 11:45 Coffee

11:45 – 12:45 Session 2 – Chair: TBC
Q+A session for all speakers from first session

12:45 – 13:30 Lunch

13:30 – 15:00 Session 3 – Chair: TBC
Focused conversations

15:00 – 15:20 Coffee

15:20 – 16:00 Session 4 – Chaired by Tara Clancy, BSGM

Summary, conclusion, and final reflections